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A Computer Mailing-List on Inborn Errors of Metabolism |
What is it?
A computer-mediated (e-mail mediated) discussion forum for
"professionals"
in the field of inborn errors of metabolism. Messages are sent via
e-mail
to our mailing "robot"
metab-l-request@franken.de that distributes
each message as e-mail to all participants of the forum.
Aim:
Metab-l is meant to provide an informal and friendly,
professional forum for meeting each other, for getting acquainted, for
exchanging information and addresses, for planning projects, for
discussing
clinical cases, problems, solutions, ideas, concepts. A permanent
electronic
Round-Table furthering contact within the "Inborn Error Community".
Who can participate?
Metab-L is meant as a meeting- place for clinicians with
care of patients with inborn errors of metabolism, for biochemists,
molecular
biologists, geneticists, pathologists, for all kinds of scientists and
researchers in the field of Inborn Errors of Metabolism. Prerequisite
is,
apart from a simple email-account of almost any kind, a professional
interest
in inborn errors of metabolism. For data security reasons patients and
patients` families unfortunately cannot be given access to Metab-L.
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Costs?
Metab-L is and has been kindly supported by Orphan
Europe Germany, Dietzenbach, and Milupa
GmbH Germany, Friedrichsdorf.
Nevertheless, steadily growing, Metab-L does consume a lot of time
and money
for administration.
So
despite there is no fixed membership fee to pay for
particpating in Metab-L regular voluntary
donations to Metab-L are very welcome and heartily encouraged!
Update: As of May 2006 especially new
or returned members are gently but firmly :-) asked to financially
support my work with Metab-L on a monthly or yearly basis (suggestion 5
Euro per month or 50 Euro per year).
From most countries this can easily be done
by following the link to PayPal below:
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How to subscribe?
Send e-mail to cjrenner@well.com
. Please send some information about your professional background
to cjrenner@well.com
at the time of your subscription request, as Metab-L is restricted to
"professionals".
Contact and List Maintainer:
Dr. med. Christian Renner
Pfleggasse 31, D-94469 Deggendorf, Germany.
Telephone: +991-31450 Telefax: +991-31464
cjrenner@well.com
Literature on Metab-L:
Renner C, Razeghi S, Richter T, Ueberall MA, Schless A.:
Metab-L -an electronic Mailing-List on Inborn Errors of Metabolism.
Acta Paediatrica 86 (1997) 892-894
Renner C, Eaton S. Electronic mailing-lists on Inborn Errors of
Metabolism.
SSIEM Newsletter no. 23, 2/1996, 2
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