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A Computer Mailing-List on Inborn Errors of Metabolism |
What is it?
A computer-mediated (e-mail mediated) discussion forum for
"professionals" in the field of inborn errors of metabolism.
Messages are sent via e-mail to our mailing "robot" metab-l-request@franken.de
that distributes each message as e-mail to all participants of the
forum.
Aim:
Metab-l is meant to provide an informal and friendly,
professional forum for meeting each other, for getting acquainted,
for exchanging information and addresses, for planning projects,
for discussing clinical cases, problems, solutions, ideas,
concepts. A permanent electronic Round-Table furthering contact
within the "Inborn Error Community".
Who can participate?
Metab-L is meant as a meeting- place for clinicians
with care of patients with inborn errors of metabolism, for
biochemists, molecular biologists, geneticists, pathologists, for
all kinds of scientists and researchers in the field of Inborn
Errors of Metabolism. Prerequisite is, apart from a simple
email-account of almost any kind, a professional interest in
inborn errors of metabolism. For data security reasons patients
and patients` families unfortunately cannot be given access to Metab-L.
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Costs?
Metab-L is and has been kindly and generously financially
supported by Nutricia
Metabolics, Nutricia GmbH, Germany.
Nevertheless, steadily growing, Metab-L does consume a lot of time
and money for administration.
So
despite there is no membership fee to pay for particpating in
Metab-L voluntary donations by listmembers to Metab-L and me are
of course welcome and stealthily encouraged!
(suggestion e.g. 5 Euro per
month or 50 Euro per year).
From most countries this can easily be done by following the link
to PayPal below:
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How to subscribe?
Send e-mail to cjrenner@well.com
. Please send some information about your professional
background to cjrenner@well.com
at
the time of your subscription request, as Metab-L is restricted
to "professionals".
Contact and List Maintainer:
Dr. med. Christian Renner
Pfleggasse 31, D-94469 Deggendorf, Germany.
Telephone: +991-31450 Telefax: +991-31464
cjrenner@well.com
Literature on Metab-L:
Renner C, Razeghi S, Richter T, Ueberall MA, Schless A.:
Metab-L -an electronic Mailing-List on Inborn Errors of
Metabolism.
Acta Paediatrica 86 (1997) 892-894
Renner C, Eaton S. Electronic mailing-lists on Inborn Errors of
Metabolism. SSIEM Newsletter no. 23, 2/1996, 2
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